Fragile X Society-India is worked up to be part of this unimaginable initiative that’s uniting Fragile X households and communities all over the world.
The Taj Mahal Tower, Mumbai has been sturdy help for a few years and can mild up once more this 12 months to help consciousness. As well as, this 12 months we’ve got garnered the help of 21 extra buildings together with malls, golf equipment, excessive rise towers throughout India.
These embrace City Centre Salt Lake and Metropolis Centre New City in Kolkata, the Woodrose Club, Augusta Membership and MLR conference centre in Banglore, Fortune Pandiyan Resort in Madurai, Ahmedabad One Mall, Rameswaram Daiwik Resort, Devi Ratn Taj Jaipur, Blue Diamond in Pune and Planet Godrej residential towers in Mumbai.
Fragile X Society-India has been a help system for households impacted with the situation and in addition try to create consciousness about it. This 12 months we’ve got held quite a few webinars empowering medical college students on the situation. “Consciousness for Fragile X is the primary and largest step ahead in the direction of analysis, therapies and a remedy,” says Shalini Kedia, chairperson of the Fragile X Society-India who may be reached @fragilexindia on Instagram and Facebook.
“I’m personally very touched by a gesture of a mother or father who has two small eating places on the Jaipur freeway and will likely be lighting up too to help consciousness in pursuit of a remedy.”
As the commonest inherited single gene reason for autism, Fragile X is the very best key we’ve got to fixing autism. Therapies for Fragile X are additionally seemingly to assist individuals who have Alzheimer’s or different mind problems. Because it causes mental incapacity and passes down silently by generations it’s crucial to create consciousness about it.
As per worldwide statistics, one in 5,000 youngsters are affected with Fragile X Syndrome and that makes it near 4,00,000 people in India alone. This can be a essential quantity and desires consideration.
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